Still Learning

I'm still learning about this thing called grief and what it means.

This week I had a goal to clean out our Liza Jane's closet. It's the last thing in her room that I haven't gone through. All of her clothes were in there, neatly organized by her Mimi more than two years ago when we arranged her room in anticipation of her birth.

She never made it out of the Newborn size sleepers and into the 0-3 month size, partly because her heart condition made it difficult to eat and gain weight.

All the baby clothes she never got to wear were just one more reminder that her precious life was ended far too soon. As I folded a sweet little pair of jammies with colorful hearts on it, I cried because she never made it into the three month size range.

I remembered the stages of grief when I was six months pregnant and we learned that she had Down syndrome. People with Down syndrome tend to be small for their age, even without a heart condition. So would she have gotten big enough to fit into that three month sleeper before the weather got too warm for her to wear it? I will never know.

This task of cleaning her closet is a very necessary one, because we are in the process of adopting a sibling group of children. We don't know yet who our future children will be, but we are actively going through a matching process. And the room that was Liza's needs to be ready for our children.

Last night we had a beautiful snowfall. I had a rough time last night after meeting a friend's newborn baby for the first time yesterday. All the feelings of anger, rage, and deep sorrow came rushing back.

The tree in our front yard, covered in snow.

Ordinarily, snow like this gives me a giddy, happy childhood feeling. I waltz around the house singing "Let it snow, let it snow, let it snow," while making cups of hot tea. This time, though, I felt I was clinging onto a shred of my former self. I was sad, I was depressed, I could hardly function.

So, I'm still learning what it means to grieve the loss of a child. Tuesday will be two years since she died, and sometimes the loss is still fresh, as if it happened yesterday. She just didn't have enough time. I didn't have enough time to love her, to be Liza Jane's mommy. The pain is still there, churning in the core of my being. And it is still hard.

Tidings of Comfort and Joy

Some old Christmas carols have been giving me so much comfort this year. Thought I would take some excerpts and compile them together in a post. It's a meditative exercise for me, and I hope it brings you comfort and joy too.

Come to Bethlehem and see
Christ Whose birth the angels sing;
Come, adore on bended knee,
Christ the Lord, the newborn King.

See Him in a manger laid,
Whom the choirs of angels praise;
Mary, Joseph, lend your aid,
While our hearts in love we raise.

Long lay the world in sin and error pining.
Till He appeared and the Soul felt its worth.

A thrill of hope the weary world rejoices,
For yonder breaks a new and glorious morn.

Truly He taught us to love one another,
His law is love and His gospel is peace.
Chains he shall break, for the slave is our brother.
And in his name all oppression shall cease.

Now to the Lord sing praises,
All you within this place,
And with true love and brotherhood
Each other now embrace;
This holy tide of Christmas
All other doth deface.
O tidings of comfort and joy,
Comfort and joy
O tidings of comfort and joy!

Merry Christmas, from our house to yours.

White Horse for Christmas

The other night while I made dinner, I heard a song called "White Horse for Christmas" by the group Over the Rhine. It's a wonderful lullaby that we played for Liza Jane while she was in the hospital. You can listen to it here.

The song took me back to the night in early December 2010 when we played it for our three-week-old baby girl. At the time she was doing fairly well, and although we knew she would need some difficult surgeries soon, we were still optimistic.

I held her in my arms that night in her hospital room, and later we gave her a bath. Those moments were and still are so precious to me. And I had no idea the horrible ordeal we were about to experience, culminating with having to remove her from life support several weeks later and say goodbye, as we sent her into the sky to meet Jesus on his white horse.

As the song played, I cried for missing her. I also cried for myself in that moment, because at the time I was still so innocent and unaware that I was about to lose her. And I cried because my baby is riding her white horse through the sky now, and I cannot be with her.

This past week there was a terrible tragedy in Connecticut. My heart is going out to the mothers there. When they packed their kids' lunch that morning, bundled them in winter coats and dropped them off for kindergarten, they had no idea they were about to lose them in a terrible massacre.

I pray for those mothers, that somehow their broken, shattered hearts will survive through this Christmas season. We never know if the moment we have with our loved ones will be the last one we will ever have on this earth. And this was a terrible, unfair way to learn.

I'll close with the words to the song, "I want to speak with the angel who said 'do not be afraid.'" It is a small comfort that we must not fear what comes after death. Those words, "do not be afraid," are what I cling to, now more than ever.

Sadness at Christmas

Sometimes, Christmas is sad. I notice the sadness comes in waves. Don't get me wrong, it's a holiday that I have loved since childhood, and I continue to really enjoy and embrace it today. Christmas helps me to get through the darkest season of the year. It is about warmth and love and family.

As much as I enjoy the holiday, though, I have found myself feeling sad over the past week. I've been thinking about the loss of my baby girl some. I've also been thinking of all the families who are having a less than ideal Christmas this year. Maybe there isn't enough money for gifts, or maybe there isn't even enough money for food, heat or shelter.

Other families are facing serious illness, or the recent death of a loved one, and they are wondering how they will get through this Christmas.

My experience with Liza taught me that I cannot take the blessedness of an ordinary day for granted. It also taught me to be very aware that many people are not having quiet, ordinary days. Too many people are dealing with loss, heartache and suffering.

I feel accountable to my daughter to keep this in mind, and to act upon it. She lives on in eternity, and I know she is watching to see the choices I make going forward. I hope and pray that my actions will honor her memory.

So I'm making small choices this Christmas to reach out beyond myself and begin to act. Baby steps seem to be working for me right now, so I am not trying to save an entire country or change the entire world. But I'm being intentional in giving to some causes that I believe matter.

I want to let the sadness that haunts my heart always, and even more at the holidays, propel me forward to do what I can to relieve the suffering in this world. And I know my daughter looks down from her place in the great cloud of witnesses, and she cheers me on.