An Invisible Parent

The other day when I got to work it was "bring your child to work day." It was neat to see how many of the 30-something professionals in my building have young children. It was also difficult because some of them were small enough that they almost would have been Liza's age.

There are a lot of little things in life that make a bereaved parent think about what would have been, and this was one of those things. It highlighted the missing piece in my life: there should have been a 17-month-old with me that day.

an empty red swing, a missing piece

During the afternoon, I was in a 4-hour training class and at the beginning, everyone was talking about how nice it was to see all the little kids at work. Inevitably, someone turned to me and asked me if I had any children. I'm at that age and I have that look of someone who would have little kids at home. I just quietly answered that no, I don't have children.

In those kinds of settings, it is difficult to know how to respond. If it is a group of people that I mostly don't know, a more public environment like yesterday, I've found it is easier not to tell the whole story. People often seem to feel embarrassed or ashamed, as if they have done something wrong by asking the question in the first place. I think it simply points to the fact that our society is not comfortable with talking about death, dying, or grief.

The question was nevertheless hard for me to face, because I felt misjudged. When I answer that no, I don't have children, I can see the wheels turning in people's minds. Oh, you are one of those people. One of those young professionals who is married but chooses not to have children. Who just chases money, pleasure, whatever, blah-blah-blah.

(If you are a young adult who has chosen not to have children for whatever reason, more power to you. I'm expressing my own perception of other people's viewpoints, but please do not take any judgment from this.)

Maybe that's not what they are thinking, but that is what I feel like they are thinking. I feel a sense of failure that I haven't lived up to society's expectations. Part of me wants to scream that I do know what it is like to be a parent, I do know what it is like to have had my world turned upside down the first time I held my baby in my arms. I know what it is like to sacrifice my time, my body, my very self for the love of a child.

a red fence, the color of my angst

I've coined a new term to describe this: I feel like an invisible parent. I have the experience of having been a parent, and I still feel the intense love for my child. But on days like "bring your child to work day," there is no outlet for me to express this.

I left work really angry, so I came home and did my kickboxing workout, which helped to relieve some of the tension. Often, exercise helps me to clear my mind and sift through my thoughts so I can figure out what was bothering me. I told my husband about it that night and talking with him also helped relieve some of the tension.

Maybe next time when a relative stranger asks if I have children, I will say yes. And when they follow up with how old are they, I will state that my daugther was seven weeks old when she died. I have a feeling this will not go over very well though.

If you have lost a child, how do you decide whether to tell people your story? How do you answer the question of "how many children do you have?"

Loving this Idea...

If you have lost a child, what do you tell people when they ask you how many children you have? I found this blog post about preserving the memory of our lost children to be a wonderful resource with lots of good ideas to think about.

And, in the spirit of preserving our family history, I wanted to share a lovely idea that I found to honor our children, the ones who are here with us, and the ones who have gone before us into heaven.

I'm always looking for ways to honor my daughter's memory. We have special photos around our home. We have a lovely scrapbook about her life and a memory box holding some of our favorite Liza Jane things. And we visit her grave to bring flowers and feel close to her again.

Sometimes I wear this lovely handmade locket that my husband got for me on Etsy to commemorate what would have been our daugher's 1st birthday. Her picture is inside.

My 2-year-old niece loves to look inside this locket when I wear it. She knows there is something special about it. She comes close, sits on my lap and says "see baby." We open the locket, and she says "aahhhh" in her sweet little girl voice. Then I tell her it is her cousin Liza who is in heaven, and ask her if she wants to give kisses. It never fails that my niece gives the sweetest little kiss to this baby cousin whom she never met.

Later the same day she will come to me and say "see baby, give kisses." Kids know - they know when something, or someone, is close to our hearts.

I just learned about another lovely way to honor our children through these lovely birds nest rings and necklaces. Pay close attention to the ring in the third picture...

When I saw this, I was floored. Is that really a nest with 3 white eggs and 1 gold egg? Symbolizing a special child that perhaps didn't make it in this life?

Yes, yes it is. This bird nest jewelry is hand crafted and customizable so we mommas can come up with a design that represents all of the children who are close to our hearts, not just the ones who are with us on this earth today.

Here is the Etsy shop where you can find these lovely pieces. And, thanks to Kelle Hampton for posting and sharing this idea on her blog.

Feeling Older

Have you ever heard someone described as "wise beyond their years" or "an old soul"? I've been feeling exactly this way lately. This is a completely neutral feeling - it isn't positive or negative - it just is.

We were at an event the other evening to support the Children's Hospital of Philadelphia (CHOP) which took such good care of our daughter. There is a committee we belong to that is comprised of young professionals who support CHOP. Being in that room with other individuals of a similar age and circumstance made me realize: I don't fit in with my peers.

Many people that we met asked us what motivated us to support CHOP, or how we got connected with the group. It was difficult to explain to them. Most of them were there because of a "success story." For some, their child had been cured of cancer at CHOP. Others had nieces or nephews, or other relatives and friends, who had been successfully treated at CHOP. One person had herself lived at CHOP as a patient for 1.5 years of her childhood and as an adult wanted to support the hospital that saved her life.

Nobody else we talked to had a child who died at CHOP. Many of them did not know how to respond when we shared our story. And this highlighted for me a feeling I've had for a while, that I have been aged beyond my years by this experience.

Glasses that I need to wear more often than I'd like... one more sign of getting older.

It's true, I have noticed some accelerated signs of aging in my body due to the stress of having a newborn in the hospital for 7 weeks and subsequently dealing with the grief. But even more noticably I have seen my psyche age due to the waters we have passed through. I identify more with the 40- and 50-something (and beyond) crowd of people that I generally meet, who are going through hardships of mid- and late-life, than I identify with my own peers.

I sometimes wonder if others who have lost a child, or gone through another form of intense loss, feel this way. It can be a lonely feeling, one of not fitting in any more. Anybody else ever feel you've aged beyond your physical years?

Having Compassion... for Ourselves

Guilt is a common struggle for people going through the grief process. We often blame ourselves for the tragedy that has struck a loved one, or review events in our minds over and over again to see if we could have done anything differently.

The reality, though, is that we could not have stopped the disaster if we wanted to. Still, our minds seek someone to blame, and too often we turn that blame on ourselves.

Lately I've been working on forgiveness - forgiving other people, but more importantly, forgiving myself. This isn't necessarily tied directly to the events that led up to my daughter's death, but it has more to do with my general outlook and mindset about the road I'm on.

The sweet baby girl whose life, and death, have forever changed me and the path I am walking. Here, Liza Jane is surrounded by the many accessories our kind hospital nurses used to prop her up and make her comfortable. She's making one of her cute fishy faces in this photo - a rare occasion when she felt well enough to be awake and a little bit playful.

Compassion toward myself has never been my strong suit. I'm someone who has been motivated to do things out of a sense of duty, obligation or guilt for much of my life. I am grateful for some close friends and confidants who have been challenging me in this area lately.

As I have been struggling with the grief process, and trying to learn how to go on with life since my daughter died, I have often been really hard on myself. One trusted friend said to me a few months ago, "Can you step back, look at yourself and have ANY compassion for yourself right now?"

That was a turning point for me, although I didn't realize it at the time. The expectations that I have set for myself based on what I assume God wants from me, and what I assume others expect from me, are at best unrealistic. At worst, they are downright harmful.

So I'm walking down a new path where I am learning to be compassionate toward myself. It is incredible how many times a day I catch myself being really harsh toward myself. And I'm working on doing just that: catching it. I am catching that thought and reconstructing it. Instead of thinking "you idiot!" when I make a mistake, thinking "I'm a human being and I make mistakes every day. It is okay."

The truth is, we all need compassion. We need to shower forgiveness on those around us, and importantly, on ourselves.

*****

On a somewhat related note, check out the new "How to Help" link at the top of this blog. If your friend or loved one is struggling with grief, this may provide some insight into the things that they will appreciate hearing at this time.

(For all my friends who read this blog, this is not me trying to give you a not-so-subtle hint! Just wanted to share with others who may be struggling to know how to support someone who is going through the loss of a precious child.)

Floundering

Losing a child has made me question everything I believe in. They say this is pretty common, although knowing that doesn't make it any easier.

My beliefs are what have given me steam my whole life. I am motivated by meaning, by purpose, and that has always been tied to my world view and my faith.

I don't think I am going off the reservation completely... at least not for today. But people who have known me for many years and think they know what I believe would probably be shocked at the paths that my views have taken ever since my daughter died.

It all started when she was in the hospital for the seven weeks of her life. Most parents will describe how things changed completely when they welcomed their first child. A massive transformation in perspective takes place. That's when the first shift occurred. Things I once thought were of paramount importance in life paled in comparison. Those things may as well have fallen off the face of the earth. Having a child changes everything.

It is a feeling that has to be experienced in order to be understood.

The second shift occurred when we realized we were losing her. As much as our world had changed when our baby arrived, it changed even more drastically as she faded from this life. The best way I can think of to describe this to parents who have not lost a child is that this shift in perspective is just as dramatic as when a child joins a family in the first place... maybe even more so.

Ever since she died, I have been floundering, especially where my beliefs are concerned. I feel like a fish out of water most of the time, flopping around, desperately trying to get to a place of safety where I can breath again. Yet I am running out of steam and resources trying to find that place back in safe waters, because...well... a fish out of water cannot breathe.

This has been a difficult topic for me to share about, because I feel very exposed when people know the struggle I've been having.  I wrote and re-wrote this blog post, trying to figure out how to express what this feels like. My hope is that by sharing these feelings, though, all of you out there who are going through a similar experience will find comfort in knowing that you are not floundering alone, that you are not losing your mind.

Grief does this to a person, and my solution for now is to not take myself too seriously, and to allow myself to keep looking ahead.

Celebrating the Resurrection

The resurrection brings hope when a love one has been lost. We believe we will see our loved ones again in heaven because of the work that one God-man did 2,000 years ago.

This video is about a beautiful painting which brings the reality of what Christ did home to me in a new way. What a precious gift, this new life. I am so thankful.

Being Okay with Nothing

Coping strategies abound after the loss of a child. I have found ways to keep my mind busy, keep myself moving, averting the imminent feeling of falling apart.

Over the last week, though, I've been practicing the art of stripping away the crutches and working hard at being okay with nothing.

Luke was away on a trip for the better part of the week. A year ago, when our loss was fresher, I booked myself solid in the evenings after work while he was away on a similar trip. I made sure I was not alone on a single evening.

This year, though, I had some important work to do for a special baby shower for my sister and brother-in-law.

And while I wanted to lean on my crutches to get through the lonely evenings (TV, friends, computer, mind-numbing distractions), I powered through each lonely, solitary evening with only the company of the radio and my mixing bowl.

Each night when I rolled into bed, I was exhausted from the effort of keeping myself focused. I started reading this book which I someone gave to me a long time ago, but I only felt brave enough to crack open this past week.

I wasn't ready until now to think about what it means to "live fully right where you are." It didn't seem right to be concerned about living fully when my precious daughter cannot live at all.

But it was time, and on several evenings it brought a flood of new tears. And that is okay. Tears are healing, and there is no way to go through the pain except to keep going.

Luke came home from his trip safely this weekend. Another time I will write about the fear that grips my heart every time he leaves on a trip. The fear that was not there before we lost our daughter, but now that we have been so close to death, brings into sharp focus the reality that when a loved one walks out the door, it literally may be the last time I see that person... ever.

Today, Luke and I were thinking about planning something special to do together, maybe a trip to the art museum to see the Van Gogh exhibit. We realized, though, that we both just need to chill and allow ourselves some time to recover from all the excitement.

I am working on being okay with doing nothing again today. Being okay with rattling around in this large, too-quiet house all by ourselves. This house that we specifically designed for our growing family during the months that I was pregnant, the same house that is now too-large, too-empty for just the two of us.

So here I am, facing the pain, facing the emptiness, and working on being more than okay with it. Working on being thankful for the quiet blessing of this moment, this day.